7th Alpha-1 Global Patient Congress

On 4 April we boarded a flight from Frankfurt to Dubrovnik, eager to attend the 7th Alpha-1 Global Patient Congress. This congress that is being held every second year in Europe is a very good chance to hear about latest development in research, catch up with other alphas, and to hear news from various patient organisations.

On Friday we spread out our Celebrate Life information leaflets and information on a table kindly provided to us for the occasion. The rest of the day was spent listening to a number of speeches and discussions. Many interesting sessions, providing a lot of information of recent research projects, and the outcome of these.

Saturday morning Karen got to open the day. She presented our Celebrate Life campaign to the attendees, and of course also had a short session where she got people up on their feet for some very light exercise. This always seems to go down well with the audience.

Celebrate Life

  • An event designed particularly with respiratory patients in mind
  • A walk of max 3 km/1.7 mi (adjusted to participants – we always start and finish togther, leaving no one behind), event t-shirts, medals and diplomas for all participants, followed by a light meal.
  • Designed to have a positive day out, with some social interaction and a light exercise
  • Non-profit. Start-fees goes back into arranging future Celebrate Life events
  • An inclusive event, open for any respiratory disease, friends, families etc.
Share

Leave a Reply

Your email address will not be published. Required fields are marked *